And so the journey began

How suddenly life can change. How illusory that feeling of control over our lives….
As you can see, I am in a reflective mood this week, as I remember the strange limbo I found myself in this week five years ago. For it was this week in 2004, that I received the news that I had cancer. This week was the waiting week – the week before surgery – the week when my life changed – the surreal week.
Just like a where were with you when JFK got shot kind of moment, the moment of your diagnosis is etched on your brain forever. Your life changes in an instant with just three words “you’ve got cancer”. Cancer, a word heavy with images of death. Sure, we’re all going to die someday – but that’s someday in the future. Who knew that someday could be now?
Nothing prepares you for this moment. It is truly a surreal feeling. I felt like I was looking on at a scene in a film where the heroine – beautiful and brave of course finds out she has cancer and will die – still looking beautiful and brave. Images of Debra Winger in Terms of Endearment popped into my mind and didn’t she corner that market in Shadowlands too? I remember how moved I was at her performances and now here I was with a starring role in my very own drama.
Surgical, chemotherapeutic and radiotherapeutic options were being thrown at me all in the space of a few minutes. All this while I am in a state of shock sniffling into the tissue the breast care nurse has just handed me. It is like being hit by a truck you didn’t see coming until it was too late. Afterwards all I can remember is the silliest thing – that the doctor wore a tie with repeating images of Donald Duck swimming in front of my eyes – I never took my eyes off that tie as the doctor delivered the diagnosis to the wall in front of me. I left the clinic in a state of shock and disbelief clutching a booklet that has been thrust into my hand with a title something like “So you’ve got cancer”.
A feeling of unreality persisted for most of the week. I cannot remember any of the actual information that I have been given – only the fateful words “you’ve got cancer”. On getting a diagnosis of cancer, you can have different reactions from the “Why me?” “What did I do to cause this?” “What did I do to deserve this?” to the denials “I don’t have cancer”, “They made a mistake”, ” You read about these medical errors all the time.” I felt a profound sense of shock but in a curious way, somewhere underneath the shock, I also feel a sense of adventure. I felt very much that I was about to embark on a journey like nothing I have ever experienced before and a part of me, what the Buddhists would call the detached observer, was curious as to how I would handle it.
My surgery was scheduled for a week’s time and over the next few days after the diagnosis, as I tried to absorb what has happened and the implications, to plan for treatment (sick leave, commitments, etc), I was possessed by a sudden urge to go shopping. I distracted myself with retail therapy, stocking up for my impending hospital stay with new nightwear, expensive handcream (which now I can’t bear to smell as it reminds me so vividly of my time in hospital), books and CDs. I felt like I was on a rollercoaster – one day bringing feelings of confidence and hope, the next day fear and despair. Luckily a lot of the fear and panic was neutralised by the love and support of family and friends. By the time I got into hospital a week later, I was exhausted, all shopped out, talked out (now I know how those celebrities feel when they are on promotional tours) and emotionally drained. The next stage of my journey with cancer was about to begin…
Awesome writing. Thanks so much for sharing 🙂
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How I remember, too! Your writing is so powerful I see Donald Duck and recall different things I bought as well, right down to the Calvin Klein spray I can no longer tolerate! Thank you for telling us. I’ll look forward to your next chapter.
Hugs & love, Jody
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Congratulations on reaching this milestone. May you continue to experience health and happiness on your onward journey!
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This reminds me so much of my “beginning” too. In fact just yesterday I was thinking to myself about how at the beginning I was so sure it couldn’t be cancer because that was so NOT what my life was going to be about, and how even today, 2&1/2 years later with a second diagnosis, it still seems surreal.
Congrats on being 5 years from that day…I look forward to being there in a few more years!
Thanks for sharing this and confirming what many people feel at the beginning.
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well done you – i know what a tough battle it has been at times but here you are five years down the road an inspiration to us all xxx
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can’t believe it’s been five years! where did those years go ???
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congratulations to you!
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may you live a long and happy life and may all your troubles be little ones from hereon out
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you are an inspiration to those of us just starting out on our journey – i look fwd to the day when I will be in your position too – looking back on the week of my diagnosis as a distant memory.
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just want to add my congratulations to you too. I don’t know you personally but i have been following your blog for the last few months and it has been a great resource and a comfort to me many times.
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yes congratulations and keep on doing what you are doing to inspire us all
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you truly are an inspiration – congratulations on reaching 5 years cancer free
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may you continue to be well and happy into the future
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very very pleased for you 🙂
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my congratulations too and my very best wishes for your future health and happiness also
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I really admire what you have done with your life since your diagnosis – your work with advocacy and esp younger women and the issue of fertility has been an inspirations
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i have to agree with what everyone has said – i have been lucky enough to have struck up a friendship with you online and i know how committed you are to helping others through the cancer experience, particularly younger women so it is wonderful to hear you are five years post cancer and doing so well x
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this post really spoke to me and took me back to my own week before surgery – i recognised myself in much of what you said
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this really resonated with me – thank you for posting
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wonderfully evocative piece – i don’t have cancer but i can really imagine after reading this the sense of shock and fear that a diagnosis can engender. thank you for posting this
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wow! i was very moved by this piece – you write very eloquently
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what a great journey you have been on and how wonderful that you can see the blessing and adventure inherent in many of life’s journeys!
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beautiful and moving and inspirational!
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congratulations!
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So happy you’re here to share this with us in your own beautiful style of writing. You once again managed to bring tears to my eyes with you vivid descrition of that day. You not only made it but you live to be an example for other going through this. Thank you and a big congratulations hug, my Twister!
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Welllll – I remember that day, clearly 😦 But I also remember knowing, without a shadow of a doubt, that you would get through it. And here you are, and we’re still laffin’ together. Here’s to many more years 😉 Love Iarla xxx
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well done – seems like you are a real inspiration to many people – i have only just discovered your blog but I will look fwd to reading more of it in future
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i discovered your blog today through twitter – wow! you are a real inspiration – looking fwd to following you from now on
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you seem to have made quite an impact on twitter judging by all your followers and the lovely things people say about you – I can see why now that I’ve read your blog
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congratulations – i am sure you have had plenty of dark days but you seem to have kept your positve spirit and it’s wonderful that you remain such an inspiration for others
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I am as you can see young at heart, but old in years – I had breast cancer in my 60s so I am very impressed with how you as a young woman have handled it. I love how open you are – I kept it pretty much hidden but i guess that is a generational thing – it does no one any favors by doing so – so well done and congratulations on your 5 years cancer free
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well done you! I know what it’s taken for you to get this far – I still see even better and bigger things in your future..watch this space everyone – this is one pretty amazing lady!
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I am so happy for you – you always handled things with grace and beauty – and continue to inspire those of us who are lucky enought to know you *hugs*
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yay!!!! congratulations honey xxx
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Yet another excellent post.
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As always, great writing JBBC! I think your reflections will connect everyone who reads this post because we’ve all had similar experiences upon receiving our diagnosis.
I had to laugh because I also went shopping to escape my new found reality immediately after I left my doctors office.
Congratulations on reaching your 5-year anniversary! Are we ever “home-free” from believing the dragon is truly dead, never to return again? It’s been only a year for me and that thought is always buried in the back of my mind. To move beyond those fears, I continue to reach out to other women in need of comfort from someone who made it through treatment and beyond.
Thank you again for all the work you put into your blog site. I am constantly referring others to it.
Much love,
Tamara
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So good to hear from you again Tamara! Thanks for your kind words and for letting me know that I am not the only one to escape into retail therapy in that way!
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Wow. Powerful stuff. Congratulations on your milestone and thank you so much for sharing that powerful journey.
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beautiful beautiful beautiful piece – you made me cry thinking of my own journey with cancer. thank youx
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congratulations on reaching this milestone and long life and happiness to you
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