#BCSM Twitter Chat
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Another great discussion on Twitter last night around the terminology of cancer. Here’s a round-up of what people were saying.
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“RT @regrounding: VERY TRUE!!! RT @DrAttai: some of us get it!! RT @planethealer: #bcsm doctors even have no clue with stage 4 – we are a growing group #bcsm
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“Love that frame!! RT @planethealer: #bcsm I say besides having cancer I am completely health- fact is that is true #bcsm
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“RT @FollowHeidi: #Bcsm my children know more about the struggles of cancer patients, what a chemo center looks like and what we need than most adults I know
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“@DrAttai How do you explain these differences to kids who are post-CA treatment? #bcsm
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““@planethealer: #bcsm today 16 years out- I was 36- I am 7 with stage 4 – there us life after and during cancer- truth!!!!” glad to hear!
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“#bcsm I am grateful to be monitored so closely -at least I know where it is
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“@chemobrainfog I think those words “remission,” “cure” etc–interfere with good empathy towards the emotional struggle. #bcsm
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“RT @subatomicdoc: @chemobrainfog Vita nova, a new life. Cancer exposes awareness of mortality. We live differently afterward. #bcsm
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“How do we reconcile our own discussion of “life after cancer” and NED? Is NED “after”? #bcsm
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“RT @joltdude: Id be more happy to use the word “cure” if we could find a way to get these diseases to come out of their hiding spots #bcsm
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“RT @chemobrainfog: @subatomicdoc i love that A New Life WAY more than New Normal #bcsm
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“I don’t live in fear, but I live knowing “survivor” title can be stripped away-mostly when I have a follow up appt it’s in my face #bcsm
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“I don’t feel as healthy due to side effects of treatment. They took a toll. Complex feelings abound post cancer. #bcsm
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“My perspective after cancer: Each day is a new start. Every day I can get up and put both feet on the floor, is a GREAT day. Simple. #bcsm
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“When people ask me how I am after cancer, my response is: surviving. That’s exactly what I’m doing. #bcsm
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“#bcsm I feel less healthy now than before dx hopefully that will change with time. I view my cancer as an opportunity to reinvent myself
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“RT @DrAttai: @subatomicdoc I like vita nova, new life better than “new normal” #bcsm
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“🙂 RT @ShyDi47: I feel for everyone in here that have gone through this disease @ I wish nothing more for you but good health. #bcsm
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“RT @stales My perspective s/p cancer: Each day is a new start. Every day I can get up and put both feet on the floor, is a GREAT day. #bcsm
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“RT @stales: me too RT @NancysPoint: I will never be comfortable with terms cured or cancer free. #bcsm
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“I love this! RT @feistybluegecko: VPD – Vita Post Diagnosis. I find it like having a lens through which I see and live things now. #bcsm
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“I often feel OK, but then I recall I felt fine when I was diagnosed. Coming up on 1 year since then – lots going on… @stales #bcsm
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“T3 I make a conscious effort to make the most of things now, not to put things off, to do things I want to do sooner rather than later #bcsm
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“RT @planethealer #bcsm cancer is not my life it is a part of it- I focus on living #bcsm
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“yes, it’s a part of the tapestry of my life. RT @planethealer: #bcsm cancer is not my life it is a part of it- I focus on living #bcsm
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“You never know how strong your are until being strong is the only choice you have! #bcsm
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“Support groups r great 4 people going through cancer treatments @ also talking about your internal feelings rather than suppress them #bcsm
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“RT @DrAttai @debmthomas takes a LONG time after tough treatment to feel healthy again – take the little things and run with them! #bcsm
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“@itsthebunk And language like “cure” sometimes decreases others’ ability to understand the fear/stress. #bcsm
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“stay in moment. absolutely necessary. honor my feelings as long as they are “reasonable” and if they consume me, get help for anxiety #bcsm
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“Y! RT @planethealer: @itsthebunk agree- I try 2 limit the time I live in fear & try hard 2 literally B here now-for my sanity& health #bcsm
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“RT @feistybluegecko Living w/ reality of poss. recurrence brings an emotional and psychological dimension which is hard to communicate #bcsm
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“Final thoughts – do the best you can. simple as that. Find your own way “to do” life post cancer dx. #bcsm
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“MT @itsthebunk: Wow, already over??!! Went by so fast! To those who mightve missed it: wrote re NED today bit.ly/z5GqdX #bcsm
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“last thought: the ominous nature of CA makes any reference to its absence uncertain; supporters of pts must learn that NED is not cure #bcsm
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“@IM4PBS be very patient with your body and mind, celebrate each tiny little victory – you’ll get there #bcsm
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“RT @IM4PBS: I agree with you 100%!!! RT @planethealer: #bcsm cancer is not my life it is a part of it- I focus on living
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“If you’re interested in the #BCSM hashtag you can check out our profile on @foxepractice bit.ly/jAHF85
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“Agree! RT @stales: RT @FollowHeidi: #Bcsm we are never done; we wake up every day and have to keep fighting. #bcsm
Thanks for taking the time to put this together – it’s been great for me to catch up on the chat this morning.
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I really enjoyed reading through these tweets and now I have found a whole load of like-minded people to connect to on twitter 🙂
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“part of the tapestry of my life” – I love that phrase!
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I like vita nova too, new life better than “new normal”
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Love this line from the dialogue: I view my cancer as an opportunity to re-invent myself. That is also how I see it. Right now, I am in fighting mode. I often imagine how happy I will be when this is behind me. Following this blog, and this discussion, makes me aware that it will never truly be “behind me.”
Cancer Warrior
http://www.perksofcancer.com
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Dear Marie,
And ONCE again, I just stand in awe that you take the time to bring #bcsm chat to a worldwide audience. It is an exceptionally fast hour and even though I was a participant (and thanks for pulling out a few of my thoughts!!), some of what you highlighted I didn’t see.
I have to read the chat the next day to glean all of the wisdom that is bantered about during the hour. This is such a great group of patients, “survivors” (I still don’t care for that word as indicated above…. ) and a NUMBER of medical professionals whose input is especially valuable. Their willingness to share their thoughts and then really listen to our feelings shows a dedication I appreciate in ways I can’t properly describe.
All disease is difficult but I can only speak about that with which I am intimately aware…… While breast cancer is treatable for MOST, treatment is sadly not successful for all. Some of us suffer ongoing side effects for years after active treatment. There is an emotional component that attacks so many of us at the core of our femininity and unlike other diseases, there are post treatment options that we should know about before any choices are made.
Anyone with a twitter account can simply add #bcsm in their tweet. Invariably, someone in cyberspace will reach out to them if they are having a “moment” or if they want additional insight about something that may be happening. There always seems to be someone around in the worldwide community. True story-I was having a mini meltdown in NY very late one night and within moments, I got message from a total “stranger” in South Africa.
I send my love to you and I hope to meet many more “tweeples” thanks to your efforts.
All the best ALWAYS, my dear friend….
AnneMarie
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Thanks for recapping this important topic and discussion.
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These chats are great and provide valuable information. I am going to share the links in hopes some of our followers will join the next chat!
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Hi Kacie, thanks for stopping by – it is great to have you here.
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Thanks for putting this altogether like this Marie – it’s great to be able to catch up on the talk and also I like to find new people on Twitter to follow too 🙂
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Marie, I’ve always admired you, but I am blown away by your incredible effort to get this incredible transcript together. What insightful comments from the participants.
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Thank you, Marie, for doing this.
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Marie,
Thank you for including me in your roundup. It’s so valuable to have a run down about what other breast cancer survivors are thinking and what they’re passionate about.
Love to you this week,
Brenda
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