Your life in YOUR hands
Your Life in your Hands is a title of a book by Dr Jane Plant, dealing with the choices she made in her own breast cancer treatment. From the moment I read the title when I picked up the book over four years ago, I knew I was going to adopt these five words as my mantra for life. These words become extremely relevant when dealing with your physicians. As Dr Catherine Guthrie writes in O magazine, “..you and not your doctors, are in charge of your medical care. They’re not gods, and you’re not a wuss.”
In this empowering article, we also hear the story of Sharon Doumas diagnosis and treatment for breast cancer, who says that “The minute the doctor told me I had breast cancer, a calm feeling came over me and I knew I needed a double mastectomy.” But what happened next stunned her. Her surgeon flat out refused, insisting that she have a lumpectomy with radiation. Doumas recalls her doctor saying, “Oh, no, you don’t want a mastectomy; you’re just panicking.” She remembers looking the surgeon in the eye and saying in a steady voice, “Do I look like I am panicking to you?”
Doumas found a new surgeon and got the double mastectomy she wanted. Though lumpectomy was a viable option, Doumas didn’t want to live with the uncertainty that the cancer might return. But how many of us have the chutzpah to debate our doctors, especially in the face of a serious diagnosis? We need to find a way: The time to stop blindly following doctors’ orders is now. Kate Clay, program director of the Center for Shared Decision Making at Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire, says today’s unprecedented number of new drugs and high-tech procedures means patients need to take control. “Don’t assume the system is going to work for you. Make it work for you.”
The first hurdle for many people is shifting their notion of doctors as benevolent dictators. Your physician is your employee, says Steven Katz, MD, an internist and professor of medicine and health management and policy at the University of Michigan in Ann Arbor. Expect the same amount of customer service from the doctor’s office or hospital as you’d expect from any other business. “Patients should be more demanding of their doctors,” says Katz, especially when it comes to their own medical files. “People want banks that offer online access, yet when it comes to medical records—or the ability to e-mail your doctor—people say, ‘Gee, I don’t want to be a bother.'”
Even if you’re healthy and haven’t had much experience jousting with your doctor’s office, you should assert yourself in small but meaningful ways. For instance, call before your appointment and ask if the doctor is running on time. If she is running late, the appointment is for routine care (say, a Pap smear), and you don’t want to wait, reschedule, says Clay. “The only time you should wait to see a physician is in the emergency room.”
Read the rest of this article here
Glad you liked the article, but I want to clarify that I’m not an MD. I’m a health journalist, and since this article was first published in “O” a couple of years ago, I’ve been treated for breast cancer myself. Ah, the irony.
hi catherine – thanks for the clarification, but I still think your point is extremely valid – I have written about this elsewhere, in relation to the fact that I had to fight to bring my fertility concerns to the table in discussions with my oncologist. While I had, and continue to have faith in my doctors, I still believe that we owe it to ourselves to be partners in our treatment decisions. Thankfully with more and more breast cancer paitents surviving their diagnosis, I believe that it is also about the quality of our lives post-treatment and sometimes this needs to be considered at the time of making tretment decisions. For me, fertility was a big issue post treatment and the fact that my fertility options were not made clear to me at the time of the diagnosis was a sore point for me,which is why I believe we must become our own advocates. I hope you are doing well and yes, isn’t life just full of irony!
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