Making treatment decisions that are right for you!
I believe firmly and have written about it many times on this blog that women have the right to choose which treatment options are best for them. They should be partners with their medical team in making decisions regarding their treatment and the outcome of that treatment for their quality of life post-treatment. I was interested therefore to read a blog post by Deborah Kotz detailing one woman’s struggle to make the treatment decisions that were right for her, when the science is lacking to guide them.
The patient, Miriam Smyth, a 51-year-old breast cancer patient had been diagnosed with a small breast tumor back in December and immediately decided to have a lumpectomy and radiation since her cancer had been caught early. But like so many other cancer patients, Smyth soon discovered that other treatment decisions aren’t so easy to make.
Her first major dilemma—whether or not to have chemotherapy—was particularly difficult. This really resonated with me as I faced a similar dilemma in choosing whether or not to have adjuvant chemotherapy and thereby impairing my fertility.
“I assumed I wouldn’t need it, had even decided not to tell my young son or coworkers that I had cancer,” Smyth tells me. Smyth, an oncology researcher at the University of Maryland Medical School, thought she’d have her surgery over Christmas break and head back to work without missing a beat. But then she had a test called Oncotype Dx, which revealed that her tumor had certain markers that put her at somewhat higher risk of having a recurrence. Suddenly, chemotherapy was back on the table.
“I read all the research on patients with similar Oncotype scores, but the data didn’t help me,” she says. “It was inconclusive as to whether I’d really be helped by the chemotherapy.” Her husband, also a scientist, advised her to think about skipping the chemo, but she ultimately decided to have it. “I knew I’d never forgive myself if I had a recurrence,” she explains. Still, it was tough for her emotionally. “I’ve studied these very same drugs in a lab, put them on human cells. I’ve seen the damage they do on a molecular level. But I had to get myself into the mind-set of being a patient and just deal with it.”
After finishing the chemotherapy in May, Smyth had yet another decision to make: whether or not to start taking bone-building bisphosphonate drugs as part of a clinical trial being conducted at UMMC. The drugs might lower her risk of recurrence, but by how much? Smyth already had less than a 5 percent chance of having a relapse, thanks to all the treatments. Would slashing her risks an additional percentage point or two—if that—be worth the side effects? Her dentist told her she’d have to delay some planned dental work if she took the bisphosphonates because of the risks of a jawbone disease associated with these drugs.
Again, Smyth read the studies showing a lower risk of recurrence in breast cancer patients who took bisphosphonates. This time, however, she decided to skip the clinical trial. “I just wasn’t convinced that the potential benefit, if any, outweighed the risks,” she says. Smyth’s case illustrated to me how personal these decisions really are for patients. When science can’t firmly point the way to the right decision, women have to go with their gut and ask themselves, what’s really right for me?
So what do you think? Did you struggle with any of your treatment options? How did you decide in the end which way to go? Did you ever feel like your fears and concerns were not taken into account when it came time to make treatment decisions? Did you feel like you were a partner in your treatment plan? Share your stories with us here.
Source: US News.com
This was a very timely post for me – I have some decisions to make and I am starting to see how important it is for me to be a part of the decision making process as a patient
I’ve just started making treatment decisions. The doctor told me that chemo and hormone therapy will bring my chance of reoccurrence down by about 50%. I think that’s a garbage percentage, but because of my age (very young for breast cancer) and the size of the tumour and it having spread to four lymph nodes, I’m going for the chemo. Like the woman in your example, I wouldn’t be able to forgive myself if reoccurrence were to occur and I hadn’t taken this measure. It’s a daunting decision – but because it is my decision, I think that’s easier to cope with.
What a terrific comment! None of us know..in fact neither do the medical professionals themselves..when cancer will or if it will or where and for whom make a reappearance. The best we can do is inform ourselves to the best of our ability and then make our own decisions based on the information and what we feel is right for us. Wishing you all the very best of luck with your treatment x