Survivor loneliness of women after breast cancer

lonely

A new study has found that women following a diagnosis of breast cancer conveyed a unique description of loneliness that was termed survivor loneliness.

They described how they felt alone in the awareness of mortality and were invalidated in the experience of ongoing symptom burden, a changed sense of identity and connection, and an altered threshold for distress that pervaded their long-term experiences.

As they sought ways to lead more authentic lives, the women sometimes withheld truth or projected images they perceived as inauthentic, contributing to their loneliness. Paradoxically, as survivors perceived connections with others as more fragile, they also felt a strengthened vitality of connection, particularly with their children, and a deepened sense of empathy and connectedness to the suffering of others.

Findings shed light on the ongoing symptom experience of women and the isolation they experienced as they sought to work through an altered sense of self, connection, and identity as breast cancer survivors. Although survivor loneliness was experienced by all participants, findings suggest that some women may be more vulnerable to heightened psychological distress.

And now, we come to the point that I make again and again …follow-up care should include giving recognition to survivors’ experiences and normalizing the situation to allow for survivors’ expressions of experience.

Through attentive and empathic assessment, clinicians need to be alert to the unmet needs of longer-term survivors, including the experience of survivor loneliness and the importance of identifying and assisting survivors who describe heightened distress. Prospective studies are needed to examine survivor loneliness and the factors that make some women more vulnerable to psychological distress. Grounded theory studies are needed to delineate the phases and challenges of breast cancer survivorship, including survivor loneliness.

Rosedale M.  Oncol Nurs Forum. 2009 Mar;36(2):175-83.

Related Posts:

Report claims not enough being done for survivors

Cancer and depression

Young breast cancer survivors and the 5 year milestone