Weekly Round-Up
Welcome to this week’s blog round-up. I’m so glad you’re here.
Beth writes about the emotional toll of waiting during a health crisis—how time stretches, compresses, and distorts under the weight of uncertainty, pain, and systemic delays. From diagnosis to surgery, she shares the deep discomfort of feeling unseen, unheard, and out of control and how creativity later helped her reclaim patience on her own terms.
In the latest OurMBCLife podcast, Deltra James shares how working with a death doula helped her confront fears and find greater peace, meaning, and quality of life.
Dee highlights her work with the New Jersey State Cancer Coalition Survivorship Workgroup and the importance of support—peer groups, community education, research advocacy, and locally tailored programs—for cancer survivors navigating life after diagnosis.
Amy calls attention to the lack of Medicare reimbursement for genetic counselors, stressing their vital role in helping patients navigate genetic health risks like BRCA mutations.
Barbara writes about the personal freedoms that come with living in the United States, especially the freedom to make choices about one’s own life.
Jennifer emphasizes the importance of self-care and emotional resilience during and after a breast cancer diagnosis highlighting the significance of setting boundaries, seeking support, and engaging in activities that promote mental and physical well-being.
Sue unpacks the often invisible emotional and personal costs of being a patient advocate from risking jobs and family stress, to facing online backlash and burnout. She urges us all to share the weight: even small acts of allyship, like signing a petition or sending a coffee, can help sustain those who speak truth to power.
Carolyn reflects on the power of visibility for patient advocates and the importance of being recognized, remembered, and held in someone’s awareness as a source of true influence and support in advocacy work.
Connie recounts her experience of a 14-day artist residency in a farmhouse, where solitude, nature, and creative immersion helped her reconnect with her artistic self and find fresh inspiration.
Thank you for joining me this week—may you find moments of peace, strength, and connection wherever your journey takes you.
Until next week
May you move through the coming days guided by what matters most to you
Much love always
Marie xxx
