When Cancer Hits Home
One of the pleasures of authoring Journeying Beyond Breast Cancer, is the opportunity to review some great books and today it’s the turn of When Cancer Hits Home, a book which bridges the gap between the usual survivor biography and the weightier technical reference books currently on the market.
About the Author
This guidebook to the treatment and prevention options for the most common types of cancer, including, breast, colon, and lung, is written by Dr. Patrick D. Maguire, a cancer specialist at Coastal Carolina Radiation Oncology and recipient of the American Cancer Society “Silent Angel” Award in 2006.
Dr Maguire has published multiple scientific articles on the treatment of cancers and with his latest book, he now turns his focus on arming readers with the essential information they need to reduce their risk of cancer and to be knowledgeable about their treatment options. He believes that the empowered patient is the best weapon against cancer.
Dr Maguire’s experience of cancer comes not just from his professional background, but also from first hand knowledge of his own family being decimated by cancer in a short period of time. In his introduction to the book, Dr Maguire writes
Thinking about it all again today keeps it as raw as I can stand. I know cancer. I’ve dealt with plenty of it in my first 42 years, thank you very little.
About the Book
What I liked about this book was the personal mix of patient stories with professional, practical and clear information on the latest treatment options available for the most common cancers. Naturally I gravitated toward the section on breast cancer, which I found contained up-to-date and well-written information on diagnosis and treatment. I found the clear information on cancer staging particularly helpful and dipping into the other chapters, I could imagine how useful the information would be to patients newly diagnosed with other forms of cancer and indeed it improved my own general knowledge about cancer diagnosis and treatment.
Who Should Read This Book?
Whether you’ve been newly diagnosed with cancer, or you are worried about your risk and are looking for the best prevention tips, this book offers a no-nonsense, easy to understand approach to your options – particularly important in an age when we can surf the web and feel we are drowning in a sea of confusing, conflicting messages.
You’d think, with nearly limitless information at most people’s fingertips, that there’s not much need for a book to cover these topics. At least, that’s what I assumed initially. However, I’ve found as both a provider and a consumer of cancer care services for my family, that’s just not the case. Unfortunately, there are countless Web sites and books in print about cancer treatment or prevention that are so misleading as to be potentially harmful (Introduction, “When Cancer Hits Home”).
This book would also be an excellent resource for those working in primary health care; and indeed for family members, who are often just as much at sea when their loved ones are diagnosed with cancer.
For myself, coming up to 7 years after my own diagnosis of breast cancer, I found the section on nutrition and lifestyle changes very useful; and although the possibility of a cancer recurrence is not something I want to dwell on too much, I nevertheless found it valuable to read the detailed descriptions of what signs and symptoms to watch for.
The chapters are listed alphabetically by disease site for convenient reference. Readers will likely want to first delve deeply into those chapters that are most acutely pertinent to their lives. Other chapters can be read later, to improve general knowledge about cancer diagnosis and treatment. Since many types of cancer are very common, unfortunately most people will have more than one type affect their family and friends during their lifetime.
Being a firm advocate of arming yourself with as much information as you can when you are faced with a health crisis, I believe Dr Maguire’s book to be an important advance in patient empowerment. The late Dr Tom Ferguson, coined the term “e-patients” to describe individuals who are “equipped, enabled, empowered and engaged” in their health and health care decisions. Those who read When Cancer Hits Home can be sure that they too will have taken a major step on this road to empowerment and engagement with their own health.
Click here to read an extract from When Cancer Hits Home
Book Giveaway
If you would like to receive a copy of When Cancer Hits Home, then simply leave a comment below telling us what being an empowered patient means to you. We will pick one winner at random from your comments.
The title of this book is powerful because until cancer hits home, or close to it, you don’t really understand cancer’s ramifications. I believe an empowered patient is critical and gathering all the information to make yourself empowered is no small task. This sounds like a good resource with a nice mix of information. Thanks, Marie, for doing this give away.
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I like your understanding of the title Nancy and thanks for your comments – insightful as always.
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I too like to be armed with as much information as I can in order to make more informed treatment decisions and this book sounds like it is a terrific common sense book.
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I too believe that your life really is in your hands – don’t rely on your medical team to make all the decisions for you – arm yourself with as much information as you can beforehand. This book sounds like a good place to start!
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Definitely believe we owe it to ourselves to find out as much as we can about our illness or disease – knowledge is power!
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I felt I was drowning in information when I was diagnosed with breast cancer 4 years ago and I desperately surfed the web – this book sounds like it would have been perfect for me at the time.
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How do we separate the truth from the misinformation that abounds in cyber-space? Sounds like this book would be a good place to start!
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Being an empowered patient is the only way to survive. Being informed and equipped enabled me to be at peace with my decisions even when some of those around me questioned what they thought was going to the extremes on treatment. Surfing the web can leave you weak, confused, insecure. The right books and the right people arm you with knowledge and Lord willing empower you to share your knowledge with others. 1 year BC survivor!
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Thanks for the great comment Marie
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Interesting to read your last paragraph on what is an e-patient. The web is changing the way people are assessing their own healthcare needs and information, and has led to the rise of the “e-patient”. However, we need to do our research with care and it is clear that we still need to draw on the expertise of scientists and physicians to help us delve beneath the headlines, weigh up the information, and filter out the correct information from the increasing amount of noise patients find online. This book seems like it does all this. Well done to Dr Maguire for writing it.
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This books sounds as if it is getting the message out there that every one of us is responsible for our own health, something i very much believe in.
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When you are diagnosed with cancer, the loss of control that most of us feel can be overwhelming. For me, arming myself with the latest up to date knowledge help me feel a little more in control again.This book sounds like it would have been perfect for me at the time. I hope I never need to read it, but if I am faced with cancer in my family again, I would like to know that is there for me to turn to.
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It’s so important to be not only your own advocate, but to be empowered on all levels of your health/care. With all the information out there (some good, some not so good) this book sounds like it clears up any confusion for the individual as well as family.
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Hi Suzzann, great to have your comment.
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This sounds like an excellent aid for cancer patients and their loved ones and a book I would love to have a copy of.
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There is a reason why so many people are using the Internet for health information. It’s because they want to be empowered patients and understand what is happening, why and their treatment options and this information is often not forthcoming from their doctors. So it’s good to hear that Dr Maguire is working to redress that balance with his book.
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I believe that patients are better served when they understand more about their disease or illness and work collaboratively with their doctor to get the best treatment for them. This is what I understand by empowered patient.
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The notion of being empowered as a patient is all about having more knowledge and control over everything related to your healthcare. Failure to engage with your healthcare in this way may mean you end up experiencing
sub-standard care and even misdiagnosis.
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Empowerment means taking being involved in the decision process when it comes time to develop a treatment plan or the need for associated lifestyle changes that may be required for success.
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Slightly off topic here – I love this discussion on being an empowered patient, and would love if you featured it in more detail in a future post.
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I have touched on it before Lily in previous posts, but I would like to explore it some more with readers, so thanks for the suggestion.
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Being empowered as a patient means taking responsibility for your health.
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Knowing that you have the right to ask for a second opinion or even a third helps you become more empowered as a patient.
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You really have to advocate for yourself when you become a patient – i have had cancer three times in my life and learned this the hard way after my first cancer experience.
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As an oncology nurse and someone with personal experience of cancer, I always say ask questions and do not hesitate to get a second opinion, if you feel you need it.
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Really interesting discussion arising out of this book review. I am following it with great interest.
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Marie, I’ve just begun to read this book myself and thanks for putting the bug in my ear to entice me to pick it back up. I am the slowest reader and have so many I’ve started and have to finish. But I can tell from what I’ve read that When Cancer Hits Close to Homes does have lotsa practical info and is easy to read – very conversational. And I agree with you, would benefit practitioners who sometimes get so weighted down with the clinical.
Oh, and congratulations on coming up on 7 years!
Rachel
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How great that you are reading it Rachel 🙂 Thanks for adding your views here to mine.
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For me, being an empowered patient means being able to ask questions and get all the answers I need to make informed decisions. I’ve found over the years that one of the most important ways to accomplish this is to make sure my doctor is a good communicator who makes me comfortable asking those questions. I have learned to fire doctors who were not in this category. I lost a significant amount of time when I was dealing with infertility because I didn’t know this. The right doctor, who hears you and communicates truthfully, makes all the difference.
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Oh Debbie, your comment about time wasted on infertility appointments really resonates with me…I am currently on my 4th fertility clinic!
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To me being an empowered patient means having the Internet at my fingertips to consult reliable websites about my symptoms. Government and trusted university sites are the best. Then I take the information I print out to my oncologist so that he can discern if I am on track. Doctors appreciate informed and educated patients. This book sounds chock full of important information of which we all should be aware. I echo Rachel in congratulating you on coming up on your seven years!
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Thanks Jan x
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I became an information junkie when I was diagnosed, and for me, knowledge truly was power. So much of the cancer experience is learned on the fly, as we go, which stressed me out. I’d rather confront the ugly truth than wonder, and becoming an informed e-patient kept my imagination from going wild with worst-case scenarios.
Congrats on 7 years!! That’s fantastic!
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Thanks 🙂
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Thanks for this info…just added it to my wishlist on Amazon :-).
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I have been looking forward to your review! I just added this book to my Amazon wish list too. Christmas is coming!
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Although you may think you know how a family member might feel when receiving this diagnosis you really never know the truth until your feet are in those shoes. I had no idea what my sister felt until I also received the cancer diagnoses a few months ago. Empowerment is the only way to be the most proactive advocate for yourself. Empowerment in all about taking the power away from the cancer and giving it back to yourself. I have been doing a lot of reading since the onset of my breast cancer and am always looking for meaningful reading, this book sounds like it’s right where I’m headed with all my reading!
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Thanks Marcy for your comment – great to have you here!
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Being empowered makes for both a better patient and a better caregiver. We all must know what we are dealing with, our options, our expectations. Being both a survivor and a caregiver, I know the power of knowledge.
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Being in a context where information and treatment options are at a different stage to more developed contexts, I find it fascinating and simultaneously challenging to think about empowerment as well as awareness raising. I am particularly struggling with the question around the consequences of awareness raising when treatment options might be limited or not readily accessible.
From my own personal standpoint, being informed and an “e-patient” is critical because of the unusual situation I am in, being distant from mainstream sources of information and support.
I very much enjoyed reading the extracts and would be very interested to read more. ( And Scots love giveaways 😉 )
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Hi Philippa, that is a really interesting point you raise about limited options and how far you can take empowerment – I would love to see you explore this in a future post of your own perhaps?
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Thanks Marie – I am preparing for a session here which aims to raise awareness sensitively and appropriately in the context. I have had some fascinating discussions and learned a great deal about beliefs about the cause of breast cancer, who is “susceptible” and treatment options for people diagnosed with breast cancer, and for that matter other cancers too. Gosh – so much food for thought!
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Empowerment means to me being able to make the choices I want when I want.
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Hi Alice – thanks for your comment 🙂
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hey coastal carolina! close to my hometown 🙂
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That’s awesome Katy 🙂
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My comment may hit some of you as a cold shower. I do agree that being well informed is a must in order to seek the best treatment, however what will make a real difference is when oncologists (surgeons, clinical and radiation) do become well informed on what is good for their patients beyond following the status quo, it is the doctor who really has the power to make a difference since the patient, no matter how informed they are, are at their lowest point when hit with cancer. A thoughtful and well informed physician can do wonders for a patient, unfortunately most have tunnel vision. After decades of the medical profession negating the benefits of nutrition they are finally understanding that we really are what we eat and although drugs do have a place in society they are not the answer to our ills. Some wonderful doctors are ridiculed by their own peers for looking outside the box when that is precisely what a professional should do when the conventional does not have the answer. Keep in mind that the conventional was designed to keep the professional boxed with their hands tied and until the physician realizes what has happened to them they will remained boxed with the patient suffering the consequences. By all means, the patient MUST become informed but it is the physician the one that posses the most power when it comes to the kind of treatment best suited for the patient and therefore it is the physician the one that must change for the welfare of the patient, they must become better informed, humble and loving, many do not belong in the profession and should seek other paths.
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