Weekly Round Up

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Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which… Continue reading

Reflections On My Sixth Blogoversary

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This day six years ago I started Journeying Beyond Breast Cancer with the aim of coming to a greater understanding of the impact of a cancer diagnosis as we journey beyond the treatment phase.  I… Continue reading

Not Blogging? What’s Stopping You?

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I’ve previously mentioned Rebecca Hogue’s initiative to teach an online course on blogging the cancer journey. Last week Rebecca asked the question: what is stopping you from blogging?  My first obvious thought was nothing is… Continue reading

Writing For The Future: Recording Conversations At The End Of Life

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  It is my great pleasure to introduce you to today’s guest writer Rachel Smith. Rachel is the family service co-ordinator for Cancer  Focus Northern Ireland.  Before reading Rachel’s guest post on the impact on… Continue reading

Blogging My Way Through Breast Cancer… And Beyond

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I’m excited to be taking part in Rebecca Hogue’s initiative to teach an online course on blogging the cancer journey. The course begins in March and currently Rebecca is putting together the course material.… Continue reading

Take The First Step

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Is Dying Of Cancer Really The Best Way To Die?

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An article written by Richard Smith which appeared yesterday in the BMJ blog has sparked some controversy.  The provocative title of the blog:  Dying of cancer is the best death was enough to raise dissent among… Continue reading

A Rough Guide To Spotting Bad Science

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I know I’ve written about this before on the blog, but today I came across two infographics which are worth sharing on how to spot medical quackery.  Ben Goldacre, author of Bad Science, classifies… Continue reading

What Advice Would You Give To A Newly Diagnosed Breast Cancer Patient?

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  I’ve just been reading 10 Tips From a 26-Year Breast Cancer Survivor in the Huffington Post. In the article Lisa Marie Wilson shares advice from her grandmother, who, aged 57, was diagnosed with breast… Continue reading

Draw Me

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I am so thrilled with these drawings done by Monica Lalanda, an emergency physician in Spain, and as you can see a very talented illustrator. Monica came to the DotMED conference last week at which I was… Continue reading

Where health and creativity intersect

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Originally posted on Jacquie Garton-Smith:
Being a doctor and a writer, it’s probably no surprise that I am interested in how two of my passions overlap. There are clear links between creativity and…

Rx Narrative: Story As Medicine #dotmed14

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Last Friday I had the great pleasure of presenting at DotMED The Creative Medicine Conference, on the role of story in medicine.  I spoke about how healthcare is at heart a narrative activity and… Continue reading

Factors Affecting The Quality of Life in Cancer Survivors

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Cancer survivors face unique short-term and long-term challenges to physical and mental health, family functioning, and maintenance of a healthy lifestyle [1, 2].  Long-term and late effects of cancer treatment may arise during… Continue reading

Every seriously ill person needs to develop a style for their illness

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In preparation for an upcoming presentation on the value of stories in medicine, I’ve been doing lots of reading. I came across this quote from writer, Anatole Broyard, literary critic and editor for The… Continue reading

Sex and Intimacy After Breast Cancer: Susan’s Story

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Originally posted on Living Beyond Breast Cancer's Blog:
There are many ways a breast cancer diagnosis and treatment can impact your sexual life. In anticipation of our new publication, Breast Cancer inFocus:…

A Nice Surprise

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  I broke off my mammoth weekly task of curating the weekly round-up to find my name on this list of influential epatients and patient advocates. You’ll recognize some familiar faces, stalwarts of the… Continue reading

Fighting Battles And The Language Of Cancer

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Media portrayals of cancer as “a battle to be fought”, and its focus on ‘brave fighters’ beating the odds, can lead to feelings of guilt and failure in people with a terminal diagnosis,… Continue reading

Writing to Heal

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“Simply speaking the truth heals” ~ Dr Rachel Naomi Remen For nearly 20 years, Dr. James W. Pennebaker has been giving people an assignment: write down your deepest feelings about an emotional upheaval… Continue reading

Knit your way to health

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Knitting has had a make–over. It’s no longer associated with old ladies; it’s become a trendy thing to own up to, with countless blogs, websites and YouTube videos devoted to the art of… Continue reading

Now I Become Myself

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Now I Become Myself Now I become myself. It’s taken Time, many years and places; I have been dissolved and shaken, Worn other people’s faces, Run madly, as if Time were there, Terribly old, crying a warning,… Continue reading

I Will Not Die An Unlived Life

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I will not die an unlived life.  I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow… Continue reading

Post-Treatment Questions to Ask Your Oncologist  

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Today’s guest article is provided by Healthline. Healthline’s mission is to make the people of the world healthier through the power of information. When you’re diagnosed with cancer, all you can think about is… Continue reading

Parenting With Cancer? Then Read This.

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I’ve known Sarah Mendoza via her blog and our Twitter chats for a number of years. She was a guest author on the blog three years ago, when she wrote about her experience… Continue reading

New Hope for Fertility Preservation In Breast Cancer Patients

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Good news for young women with a diagnosis of breast cancer. Adding a hormone-suppressing drug to chemotherapy helps avert premature menopause in hormone-insensitive breast cancer patients, according to a recent clinical trial that some… Continue reading

The Cancer Olympics

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Survivor. When I was in treatment, I used to look at that word with longing.  I thought, if I was ever so lucky to be a survivor, I would consider that phase so… Continue reading

Remembering Ismena

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Ismena, we will miss your beautiful spirit from our lives, but part of your spirit lives on in each of us who were privileged to know you.

Head Up; Heart Strong #MedX

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  As I waited nervously back-stage to deliver my Ignite speech at the Stanford Medicine X conference last week, I watched the speaker before me on the monitor. His name was Matthew Dudley,… Continue reading

Speechless!

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*UPDATE* I received the following email from the marketing company. This shows once again the power of social media to amplify our voices and how much stronger we are when we stand together. Marie, On… Continue reading

Medicine X. I am really here!

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  I have to keep pinching myself to make sure I am not dreaming. I am finally here in beautiful (gosh it is beautiful) Palo Alto for the Medicine X conference. Before I… Continue reading

What I Wish People Knew About Depression

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Originally posted on Therese J. Borchard:
Someone recently asked me to write on what I wish people knew about depression, in light of Robin William’s suicide. Here’s my response. I wish people knew…

Weekly Round Up: The Other Voices Edition

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Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which… Continue reading

Thoughts On Grief

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In a bid to make a blogger out of Karen, I am sharing another excerpt from our email correspondence (with Karen’s permission). I value her wisdom and compassion so much and really think… Continue reading

Why patient stories actually matter

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Originally posted on Heart Sisters:
by Carolyn Thomas  ♥ @HeartSisters Most of our medical visits start with some variation of this opening question: “Why are you here today?” Connecting with and understanding patients…

What Not To Say To Someone Who Is Depressed!

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Following on from yesterday’s post on what Robin Williams death teaches us about depression, this cartoon from Robot Hugs is a perfect illustration of how misunderstood depression can be.

What Robin Williams’ Death Teaches Us

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Robin Williams’ death has caused shock waves to reverberate around the world. The hardest thing for people to seemingly comprehend is how someone as loved and admired as he was, found it so hard to live in this world. But that’s the insidious nature of depression.

When Loneliness Makes Cancer Harder

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I was blessed to have the unfailing support of my boyfriend (now husband) and the tender care of my mum to help me through the rigors of cancer treatment.  And yet I still… Continue reading

What’s So Special About Medicine X?

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  I may still be reeling from jetlag after returning from my year’s sabbatical in Australia, but I am already gearing up for more disruption to my circadian rhythm as I prepare for a trip Stateside… Continue reading

Story Of A Love Note

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Many of you know the lovely Karen Sutherland, an honorary blogger in our blogosphere. She is always so generous and supportive on our blogs, taking the time to write heartfelt comments when we post.  For… Continue reading

In Memory Of Jessie Gruman, Patient Advocate Extraordinaire

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Earlier today I was on one of my regular healthcare Twitter chats and I heard the news that the wonderful patient advocate Jessie Gruman has died.  I was so shocked and deeply saddened… Continue reading

Weekly Round Up: Repost Yourself

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  I mentioned last week that I have to step back from the weekly round-up for a few weeks, but that’s no reason not to share your blog posts. Please leave a link… Continue reading

Stanford Medicine X Conference

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I participated in my first live Google Hangout with some other Stanford Medicine X  ePatient delegates today. I still can’t quite believe I am going to the conference this September.  It is going… Continue reading

Curating List Of Breast Cancer Blogs

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I was asked recently if I would add a list of breast cancer blogs to my curated lists on List.ly. I think it’s a great idea and I have started populating the list with… Continue reading

The Path To Your Door

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The path to your door Is the path within: Is made by animals, Is lined by flowers, Is lined by thorns, Is stained with wine, Is lit by the lamp of sorrowful dreams,… Continue reading

Narrative Matters: Exploring Cancer Stories Online

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I am honored to be taking part in a special lecture  at Flinders University Centre for Innovation in Cancer, Adelaide, South Australia,  with co-host Cancer Voices SA that will explore the mechanisms and therapeutic benefits of… Continue reading

My Great Big Aussie Adventure

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What an incredible experience it has been to drive through the continent of Australia over the past week. Following the Explorer’s Way, the 3000 km journey through the heart of Australia is one of… Continue reading

Weekly Round Up: The Other Lives Edition

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Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which… Continue reading

Motivation Monday

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Weekly Round Up: The Being Vulnerable Edition

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Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which… Continue reading

Mindful Monday

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Illustration by Maurice Sendak from Open House for Butterflies by Ruth Krauss

Weekly Round Up: The Just Bad Luck Edition

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Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which… Continue reading